Skip over navigation

Press Release

Ontario Ombudsman comments on province’s PET scan announcement

TORONTO (July 23, 2009) – Ontario Ombudsman André Marin today welcomed the government’s announcement that it will make positron emission tomography (PET) scanning a publicly insured health service for some cancer and cardiac patients.

The announcement is based in part on the Ombudsman’s advice, following his investigation into the government’s PET scan program evaluation process.

Mr. Marin launched his investigation in September 2007 after receiving numerous complaints from doctors and patients that the evaluation had gone on too long and Ontario was lagging behind other provinces in the provision of publicly funded PET scans.  It has been seven years since the government decided to conduct clinical trials to determine whether it should fund PET scans for specific indications.

The investigation was conducted by the Special Ombudsman Response Team (SORT) and involved in-depth research into PET scan technology, the accessibility of PET scans in other provinces and interviews with about 50 physicians as well as patients and other stakeholders.  It was completed in December 2008.

At that time, the Ombudsman provided a copy of his preliminary report to the Deputy Minister of Health and Long-Term Care for a response, as required under the Ombudsman Act.  After a number of meetings with senior Ministry officials, the Ombudsman determined that the issue could be resolved without need for a published report.

“Our investigation determined that this is a very complex issue, nowhere near as black-and-white as it is sometimes made out to be,” Mr. Marin said.  “It quickly became clear to us why the evaluation process had taken so long.  However, that was no justification for not taking action, which we urged the Ministry to do.  I recommended that PET scans be expedited for those patients who already qualified for them under the cancer and cardiac registries.  I’m gratified that the Ministry has taken my advice and finally moved forward.”

The announcement notes that PET scans will be available for cancer and cardiac patients under specific conditions where they have proven to be clinically effective.  Patients with conditions that are not covered may still be eligible for PET through the PET Access Program.  The Ministry has assured the Ombudsman that requests through the PET Access Program will be processed in a timely manner.

“As a result of our recommendations, physicians will now be made aware of the avenues available to get approval to have patients who are not covered under the new regulations provided with PET scans,” Mr. Marin said.  “That is a safety net that should catch those who fall through the cracks of today’s announcement.  This existed before, but the Ministry did very little to let doctors know about it until several years into the evaluations.  The Ministry has indicated that future technology assessments will be more open and transparent, which is encouraging.  I’m convinced that this resolution is a much-needed step forward by the government that will benefit many people in need.”

While it is relatively unusual for the Ombudsman to choose not to publish a report, he has chosen this course a number of times in recent years.  In 2007, a cancer patient was reimbursed $76,000 in medical costs and the province’s out-of-country program was overhauled in the wake of an Ombudsman investigation, without need for a published report.  That same year, mental health services for the children of Ontario-based soldiers were increased by the province after the Ombudsman’s investigation quickly resolved the issue, also without a published report.  The Ombudsman also resolves thousands of individual complaints every year.

Mr. Marin noted that, as with all SORT investigations, his team will continue to monitor the province’s progress on the PET scan issue, with the potential to re-investigate if evidence warrants.
“I also recommended to the Ministry that it establish a process so that when the next new technology comes along, it will be assessed as quickly as possible.  Bearing in mind what they can mean to people with life-threatening conditions, these kinds of assessments should be properly researched, planned and implemented – and the Ministry should be accountable throughout.”

-30-
Aussi disponible en français

For further information, please contact:

Sara McMillen
Communications Officer
Tel: 416-646-8008
smcmillen@ombudsman.on.ca

or

Elena Yunusov
Communications Officer
Tel: 416-586-3521
eyunusov@ombudsman.on.ca

3 Comment(s)

Leave a Comment

Sam Bruno says:
July 23, 2009
Thank you for your hard work and positive results.

Sam Bruno
Darwin Brunne says:
July 26, 2009
Your team is to be congratulated for their dogged and thorough approach to moving this important PET scan issue forward. Your continued monitoring gives people some confidence that the program will be rolled out as described. God bless all of you.
Maureen Coleman says:
July 26, 2009
The Neuroendocrine Cancer commnunity requires a different kind of PET scan from the FDG PET scan, which can better detect lesions.
We are a community of several thousand patients in Canada and 125,000 patients in the US.
In three years our incidence (Modlin) will be 7-8 per 100,000 at diagnosis. We are currently, according to the carcinoid Cancer Foundation in the US,www.carcinoid.org 90% misdiagnosed.
The FDG scan is not helpful for this community.
Clinical experts can confirm this.
Our patients require an F-DOPA PET Scan or a Gallium 68 PET scan.
We would like to see Ontario pay for these diagnositic scans.
The best PET scans for Neuroendocrine Cancer Patients are the C-11 5HTP PET scans which are in Sweden and require an onsite cyclotron. But the Gallium68 scan will work well.
Please check our 2008 and 2009 conference videos in Toronto and Winnipeg on www.cnetscanada.org which discuss nuclear med diagnosis and treatment options.

Maureen Coleman
President
Carcinoid Neuroendocrine Tumour Society Canada
www.cnetscanada.org